Speaker Profile
Vice Chair, Board of Directors, Association for Creatine Deficiencies
Biography
Jeffrey Randall Allen is a father on a mission. His son Lucas has Creatine Transporter Deficiency (CTD), a rare genetic disorder that keeps creatine from reaching the brain and has no approved treatment.
In 2025 Jeff won Prime Video's Beast Games and its $10 million grand prize, and he turned that national spotlight into a campaign for CTD. He created Ruck4Rare, walking 365 miles across California and later rucking five marathons in five days with Lucas's weight on his back. Together those efforts raised awareness and funding for research.
Jeff connects families, scientists, and funders to move rare disease research toward patients faster. He believes no family should face a rare diagnosis alone.
Session Abstract – PMWC 2027 Silicon Valley
Davos of Precision Medicine
PMWC 2027 Program
January 27–29, 2027 · Santa Clara Convention Center
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In a few words.
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